F is for Fluency...

I thought long and hard about whether I want to write this post. I decided it was not something I wanted to shut out or hide from others. I believe such experiences must be shared. You never know who will benefit from the knowledge. If this post helps even one disfluent child, writing it will be completely worth it.

Wikipedia tells me that Fluency is a speech language pathology term that means the smoothness or flow with which sounds, syllables, words and phrases are joined together when speaking quickly. Fluency disorders is used as a collective term for cluttering and stuttering. Both disorders have breaks in the fluidity of speech, and both have the fluency breakdown of repetition of parts of speech.

Over three weeks ago I didn’t think much about the word fluency. But over these past three weeks I have been living, eating, sleeping and sweating the word fluency. Or rather disfluency.

Three weeks ago I noticed that my perfectly fluent daughter had occasionally begun saying ma-ma-mamma. “Why are you saying ma-ma-mamma?” I asked her. She would then repeat her sentence without the stutter. And my frown would disappear. But then after a while she’d do it again. She started saying da-da-dadi a few days later. Was I the only one noticing it? Why wasn’t anyone else at home saying anything about it? Maybe I was just being paranoid. But it stayed at the back of my mind. I mentioned it to hubby and he brushed it aside saying she was doing it on purpose.

Okay, so I was only being paranoid. A part of me told me I shouldn’t be ignoring it. But I turned a deaf ear to this voice. I blocked it out because I didn’t want to hear what it was saying. I realise now that I was in denial.

Then one Sunday he noticed it too. It was appearing in every fifth sentence or so that she spoke. And my daughter talks All.Day.Long. His confirmation of my fear was a terrible realisation. Our limited and false knowledge told us that we had done something to cause this. We had emotionally hurt or scared or neglected our daughter which had turned her into a stutterer.

I remembered a book I had read ages ago, when I was in school, about a woman whose son stuttered only around her, but never did when she wasn’t around. I think it was a Sidney Sheldon novel. I don’t remember anything else about the story except that the woman was a manipulating b*@#& who had instilled so much fear in her own child’s heart that he had begun to stutter. But I wasn’t that woman. Then why did this happen to Zainab?

I began to blame myself. My mind went over every single time that I had scolded her, told her off, snapped at her, smacked her, spoke to her angrily, told her she was being naughty, told her to apologise for being naughty... I went over it all over and over in my head, hating myself more with each memory. Was she feeling neglected after my son was born? Was she jealous or angry? Was she scared of something? I convinced myself that I was a terrible, terrible mother and my bad deeds had finally come back to haunt me. Except my innocent little baby had to pay the price.

I got over that stage too. I decided to look at things rationally. We had a problem. Now we had to fix it. If it could be fixed, that is. I spent hours and hours reading all that I could on the internet about stuttering or stammering. Searching the web for information on the subject was a highly frustrating experience. There were so many theories and contrasting views on dealing with stuttering in children. There were also numerous cases mentioned on the discussion boards of parenting sites about children aged between 2.5 and 3 years who suddenly started stuttering. But they were fine in 3 to 6 months. Apparently, it is a developmental stage, where the child’s brain is absorbing so much information that it tends to get taxed, but learns to overcome the pressure in a few months. This information was so reassuring. I breathed a sigh of relief. She was going to be okay.

But then I tried to find out how to deal with it or react to it as parents. Unfortunately, nothing was helpful. While some sites mentioned ignoring the problem, some said that we must ask the child to speak slowly. Some sites said NEVER ask the child to speak slowly. Some sites said therapy is not needed for such a young child, while some insisted that the sooner the child receives therapy, the better. All this while, Zainab’s stammer worsened. She was stammering at every sentence and every morning I realised with a growing sense of panic, it was getting much, much worse.

My chirpy talkative baby girl was struggling to speak. She couldn’t understand what was happening to her. She asked me once, “What’s happened to my voice, mamma?” And I had no answer to that. It was heart breaking. I mentally winced and cried for her everytime I heard her struggling to express herself. But I kept up the smile on my face, determined to never let her get any inkling of our worry.

We spoke to her teacher at her playgroup, to other parents, we met doctors and therapists. To a cut a long story short, we decided to go to a speech therapist because we needed an expert to tell us what to do. I’m so thankful to God that we didn’t delay any further. We learnt that there are so many theories about why disfluencies occurs in children but no concrete proof. That means science has no idea why some people stutter. The therapist said that a popular reasoning is that children in this age group are learning and absorbing so much information and their language is in the crucial developmental stage, that their brain gets overworked, manifesting itself as a stutter.

Obviously, there was no point in beating ourselves up about it and instead we had to focus on solving the problem. We were told that we were to bring Zainab for weekly sessions but mostly it was important for the parents to continue this model at home and have similar daily sessions with the child. Miraculously, after just 2 sessions, Zainab underwent a major change overnight. Today, all of the sudden, she was almost her old fluent self again. Nobody will say she has any problem with her speech. But rather than get complacent, we know we have to patiently work with her to remove the problem completely and stop it from recurring.

It is mind numbing to realise you child has a problem. Especially one that is difficult to comprehend. For a while I could feel my world shattering around me. Because of Zainab’s charm, intelligence, quick witty speech and her confidence we had dreamed big dreams for her. I had even pictured her as an active participant in the school debate team one day. These weeks have strained our nerves and I wondered where Zainab’s life would lead her.

But today was a promise of a better tomorrow. It was a reminder that nothing is constant. That there is a light at the end of the tunnel. Zainab is a fighter. She is not ready to let something like this get in the way of what she loves to do. TALK!

B is for Blah Blah...

I have never been big on talking. My mother says I started talking very early and just wouldn’t stop. I would talk and talk and talk but only in the comfort of my family circle. In front of guests or outsiders, I would be one of those children who would speak only when spoken to.

The years rolled by and even though I would talk a lot among my friends and on the phone with them, I was not a confident talker. I was bad at telling stories and I usually didn’t know how to come to the point. More often than not, when I tried to debate with someone on a topic, the reasoning came out all wrong. Not the way it was in my mind.

Ironically, I loved participating in speech competitions. I used to work hard at preparing for them, practicing for hours in front of a mirror till I got every line and expression perfect. I have won a couple too, not because I’m a good speaker, but because I practiced so hard. It gave me a thrill to stand in front of a listening crowd and deliver my speech. I would be extremely nervous and feel faint even, thinking of what I’m going to do, but ultimately it was like getting a high. And I loved that.

Around this time I came across a prayer in the Holy Quran - Chapter 20 (Surah Taha), verses 25 to 28. The Almighty God commands the Prophet Moses to go the Pharoah to call him to the right path. It is believed that the Prophet had a problem with his speech, and hence before going to the Pharoah he prayed to God.

"O my Lord! Expand my breast; Ease my task for me; And remove the impediment from my speech, So they may understand what I say.”

This prayer touched a chord with me the moment I read it. Since that day I have recited this prayer every single day of my life, randomly and particularly, when I have something important to say, either to a crowd or to an individual.

I’m a listener. I love listening. I would remember my friends talking about how they get so bored in those boring dinner parties where their moms and the other aunties would just talk and talk. But I remember enjoying those times. I would happily sit at the periphery of such groups and hope that no one asks me anything. I would be content in just listening to them talk. It was fascinating to study the different people and the various personalities that society holds. I rarely took note of what they wore or how pretty they looked. I’m not a very good observer like that. But I would take note of the way they spoke and how they spoke it. I could make out honesty and the lack of it. I would notice subtle hints in their talk about what their lives were about. It was fascinating.

Today, I don’t attend such dinner parties because the social life I have after marriage is vastly different from that of my younger days. My best friends, the ones I would speak to for hours in my school days, now live far away. We’ve all gotten so busy with our lives that those long conversations have become few and far between, but thankfully are still alive. I’ve come to realise that I have no patience for chit chat anymore. I can manage a few minutes of polite conversation but mindless banter annoys me. I also have no patience for people who repeat things – again and again. It is such a huge waste of time. There are just too many people out there who painstakingly spell things out, things that are understood and don’t need to be put into words. I get so annoyed when that happens, I wish I could hurry the person up. The only people who are allowed to get away with spelling things out are kids.

When my daughter Zainab started to talk, I realised she was going to be very different from me. She also began early and started talking and talking. Her vocabulary grew in leaps and bounds and she spoke clear grammatically correct sentences in Hindi when other kids her age were still learning to say Mama. More than her vocabulary, her thought process amazed us. She was a keen observer and would use new words in her speech all the time. Even if she doesn’t know what some word means, I have found her trying to use the new word in almost every sentence, till it became a part of her speech. Sometimes she will be busy playing with her toys or watching television while her father and I will be having a conversation, and a little later she will mention something that we spoke about, even though we had no idea she was paying attention to us.

Zainab is turning 3 in May. Someone told me recently that Zainab has the vocabulary of a 10 year old. That might be an exaggeration but is it very close to the truth. Just a few weeks ago her playgroup teacher said the same thing about her though process and how bright she was. She also said that Zainab is quite a composed child because she often sees her ‘explaining’ things to the other children or helping them with their games. She is composed at home, at least not most of the time. She is like a regular boisterous little toddler who needs constant attention and entertaining. When she paints, she paints her face and hands more than she paints on the paper. When she’s making ‘towers’ with her building blocks, she is also throwing the blocks right across the room in order to make a big mess, just the way she likes it. When the ads appear on television she watches awe struck, and has now learnt to sing/speak along with almost all the ad jingles and brand tag lines. I’ve often heard her say which she is deep in play, “Dil jo chahe paas laye.” Or “I’m lovin it!”

She started speaking English a few months ago. We consciously chose for her to learn English as a second language because we wanted her to be fluent in her mother tongue first. That achieved, we began speaking to her in English. My husband and I speak to each other in English, so Zainab already understood the language. She loves speaking English. She tries to speak in English all the time. Even if she can’t find the right words she will say something to get her point across. It’s wonderful to see how she is learning the language, almost on her own.

Out of the blue, a few days ago, we found that she suddenly developed a speech problem. We are not sure if it is something to worry about or something that will solve on its own. We are going to speak to an expert about it and see how we can help her overcome it as soon as possible. It breaks my heart but I know we have to be strong about whatever it is. Until then, I find myself constantly reciting my favourite prayer.